WARNING: the foods we cook for Abby are safe for her, but not necessarily for everyone. Please confirm any ingredients are safe for you before using in your diet. Food Allergies can kill and the best policy is complete avoidance. Read this post for more info.

Tuesday, October 28, 2014

If I Could Do it Over...

I was digging through photo's the other day and thinking a lot about the various choices we made raising the girls and I could not help but feel a huge stab of guilt over a few choices I made. When "everyone" else including the Drs. are encouraging or reassuring that your decisions are good ones, you tend to ignore that "gut" feeling telling you to do your own research, telling you to wonder why that other smaller group of families is telling you to think twice before just going along with the masses.

1) Think. I have a brain that is perfectly capable of reading medical research. We all know that depending on the outcome wanted, research can be tweaked to support one side or the other. Looking back I wish I had trusted myself to believe what I read.

2)Trusting Drs.
I should have never. Abby had chronic ear infections even though she was breast fed. The Ped was often hostile to me and even said that if I was really breast feeding her then it was impossible for her to have all these ear infections(which she took multiple antibiotics for)I fought for months to get her to an Allergist because the Ped at the time said it was "impossible" for a baby under the age of 1 to have food allergies. (I have heard other Mom's even today say they have still been told the same mistruth). She wasn't normal, I had been around a ton of other babies and I KNEW something was terribly wrong. Again we questioned the Ped who blamed me for her delays. I was told I held her "too much", that she needed to "cry it out" in order to develop properly. My "gut" said that in Abby's case that particular advice was child abuse.. At that point my "gut" said don't trust the Drs. advice when it conflicts with your gut.(I did continue to hold Abby whenever she wanted and also refused to let my girls cry when crying clearly means they needed Mom or Dad) As she hit puberty I was told to "push her".. she was just being dramatic,needed to toughen up, she was just sensitive.. The worst advice was Public School was the best place for her to get stronger.. Hardly. Abby listened to them as well and when we pushed, she broke. She trusted their advice and felt she had failed when she got sicker, not that the advice was wrong in the first place. My "gut" said, keep her home, let her rest, and instead I trusted the Drs who were WRONG.

Not as safe as they tell you. My gut said - "don't do it", and I did not listen. I will regret that decision until the day I die.

4) Medications. Asthma, allergies, sensitives.. she was prescribed an extreme amount of medications. If one did not work or caused reactions instead of just cutting it, the Dr. would quickly replace it with another. She got sicker. Looking back? I would have trusted what I saw in Abby and not the Dr or water down side effects listed on the insert. I still remember the moment that I "knew" all the medicines were creating as many issues as they were treating.. As we were leaving the Drs. office one afternoon and the Dr. as he walked by said " oh and you might want to have her eye's checked in a couple months because it can cause glaucoma." I will never forget his nonchalant attitude.. That was one of many wake up calls.

5)Food. When you have a baby allergic to what seemed like everything you learn pretty quick about food. I did learn. 20 years ago it was a whole lot easier though to remove allergens. It was still easy enough to find single ingredient food that wasn't grow,sprayed,treated and cross contaminated with everything. The last few months I nursed her I ate a lot of rice and drank a lot of lemonade and though it wasn't easy the ear infections slowed and she was happier, cause and effect and I was glad to do it. That lesson alone should have been a blueprint forever to food in my home,but I ignored the evidence and trusted the Drs. As she got older all her Drs. said she had "outgrown" those allergies and to "let her eat whatever she wanted.". Her leaky bladder, trips to the bathroom, were just her, they had NOTHING to do with what she ate. When she got so sick again at puberty I removed a few of the old allergens without much result. When I asked the Specialists whether food could be contributing to her health crash I was told "absolutely not". I grew up with a food aware Mom and a food aware community. My friends ate carob and their parents bought food through co-op's. My Uncle drank soy milk.. farmers markets were a joy. My hubby on the other hand grew up in a family where a bag of chips and a big gulp were at least a weekly if not daily event. The girls friends ate pizza hut and McDonalds and went out to eat for dinner constantly. Ate white bread and shockingly orange mac and cheese. All the commercials on the TV, and the grocery stores were full of these things, everyone else ate the stuff so it had to be safe right? Not when your child is an orchid and not a cockroach. My "GUT" knew food was contributing to her health issues.

The big question is, if I had followed my gut the whole time, would she be healthy? No, probably not. She had issues in the womb. But, I ABSOLUTELY BELIEVE, if I had listened to my gut she would NOT be as sick as she is today. Maybe she would have been able to finish college. To go on a date. To have a boyfriend.. even to be well enough to go out and shop whenever she wanted.. Heck, maybe she would even be well enough to go for a Dr. checkup without ending up in bed for a week. If I could go back in time, I would have made very different decisions.

I share Abby's struggles on this blog partially for her and I. I have been humbled by so many truly caring folks who reach out constantly who have gone through the exact same thing. Or who have learned some terrific tips and tricks to help keep her body as healthy as possible. This blog is kind of our way of reaching out and trying to find others like Abby. I also share her journey as a WARNING. You have a choice. You can make your own decisions based on what you know is best for your child, or you can ignore your gut. I made horrid mistakes, if I cannot go back in time, I always hope someone who is faced with one of these decisions will read this and know they have a choice. They don't want to be in my position today, knowing that had I just listened to my gut, the outcomes for Abby could have been much better.

Never, 'for the sake of peace and quiet,' deny your own experience or convictions." -- Dag Hammarskjold, Swedish diplomat

Tuesday, October 21, 2014

MitoAction and Flu Shot's too? :-(

Today at 9:06 AM Christine Cox, Director of Outreach & Advocacy (MitoAction)

eNewsletter Stationery Header
If you are unable to view the message below, CLICK HERE to view this message on the website

Research Study Opportunity

National Human Genome Research Institute researcher Peter McGuire, M.D. is conducting a study on immune issues in mitochondrial disease and other inborn errors of metabolism. The Metabolism, Infection and Immunity ("MINI") study is ongoing and currently is seeking additional patients with mitochondrial disease to participate.
The NIH is offering seasonal flu vaccines as well as the pneumococcal vaccine to study participants. If a vaccine is received, the participant's response to the vaccine will be measured and shared with the participant or his/her family. Please note that receipt of vaccines is not required for participation in the MINI study.
MitoAction has received the following information about the MINI Study from the NIH:
Overview of the MINI study
Letter about the MINI study and mitochondrial disorders
Information about flu season for patients with mitochondrial disorders and inborn errors of metabolism
To be eligible, participants must:
Be at least 2 years of age
Have a diagnosis of a Mitochondrial Disorder
Be able to travel to the NIH Clinical Center in Bethesda, Maryland
For additional information about the MINI Study, please visit http://www.genome.gov/mini/

Granted, it is pointed out that you don't have to have the vaccine to participate....

Still, if you are like me, the last thing you want to hear again and again and again and again and again... is "Flu Shot".

Commercials, sitcom's, government announcements, schools, pharmacies, it is insane.

On the other hand, there are plenty out there that feel the potential protection for a few age populations makes injecting this shot worth the risks. So maybe these type of emails from patient support non-profits make them feel better about the choice they make to buy these.

On a positive, America is waking up and more and more folks are taking the time to read and assess whether the "possible' protection gains from these are worth the scary risks.

Vitamin D(way safer then flu shots), hand washing(safest!), good rest( great idea for all diseases)and improved nutrition (excellent choice) are the safest options in flu prevention and not only help protect you from the flu, but also help keep your body far happier and healthier.

Just saying.

Mito Vocab:


Via Wiki: Immunotoxicology (sometimes abbreviated as ITOX) is the study of immune dysfunction resulting from exposure of an organism to a xenobiotic. The immune dysfunction may take the form of immunosuppression or alternatively, allergy, autoimmunity or any number of inflammatory-based diseases or pathologies. Because the immune system plays a critical role in host resistance to disease as well as in normal homeostasis of an organism, identificantion of immunotoxic risk is significant in the protection of human, animal and wildlife health.

In the non-adult (embryo, fetus, neonate, juvenile, adolescent) this study is referred to as Developmental Immunotoxicology (commonly abbreviated as DIT). For most toxicants examined to date, the developing immune system exhibits a heightened sensitivity compared with that of an adult. For this reason, DIT screening has applications to human, animal and wildlife health protection.


The term xenobiotics, however, is very often used in the context of pollutants such as dioxins and polychlorinated biphenyls and their effect on the biota, because xenobiotics are understood as substances foreign to an entire biological system, i.e. artificial substances, which did not exist in nature before their ...
Xenobiotic - Wikipedia, the free encyclopedia


From Wikipedia, the free encyclopedia

Ototoxicity is the property of being toxic to the ear (oto-), specifically the cochlea or auditory nerve and sometimes the vestibular system; it is commonly medication-induced. Ototoxic drugs include antibiotics such as gentamicin, loop diuretics such as furosemide and platinum-based chemotherapy agents such as cisplatin. A number of nonsteroidal anti-inflammatory drugs (NSAIDS) have also been shown to be ototoxic. This can result in sensorineural hearing loss, dysequilibrium, or both. Either may be reversible and temporary, or irreversible and permanent.


Nephrotoxicity (from Greek: nephros, "kidney") is a poisonous effect of some substances, both toxic chemicals and medication, on the kidneys. There are various forms of toxicity.
Nephrotoxicity - Wikipedia, the free encyclopedia


via Wikipedia; Aminoglycoside is a medicinal and bacteriologic category of traditional Gram-negative antibacterial therapeutic agents that inhibit protein synthesis and contain as a portion of the molecule an amino-modified glycoside (sugar);[1][2] the term can also refer more generally to any organic molecule that contains aminosugar substructures. Aminoglycoside antibiotics display bactericidal activity against gram-negative aerobes and some anaerobic bacilli where resistance has not yet arisen, but generally not against Gram-positive and anaerobic Gram-negative bacteria.[3] They include the first-in-class aminoglycoside antibiotic streptomycin (images at right) derived from Streptomyces griseus, the earliest modern agent used against tuberculosis, and an example that lacks the common 2-deoxystreptamine moiety (image right, below) present in many other class members. Other examples include the deoxystreptamine-containing agents kanamycin, tobramycin, gentamicin, and neomycin (see below).


Mitochondrial Plasticity:

Mitochondrial biogenesis:

Genetic Toxicology:

From Wikipedia, the free encyclopedia

Single-strand and double-strand DNA damage potentially caused by genotoxins
In genetics, genotoxicity describes the property of chemical agents that damages the genetic information within a cell causing mutations, which may lead to cancer. While genotoxicity is often confused with mutagenicity, all mutagens are genotoxic, however, not all genotoxic substances are mutagenic. The alteration can have direct or indirect effects on the DNA: the induction of mutations, mistimed event activation, and direct DNA damage leading to mutations. The permanent, heritable changes can affect either somatic cells of the organism or germ cells to be passed on to future generations.[1] Cells prevent expression of the genotoxic mutation by either DNA repair or apoptosis; however, the damage may not always be fixed leading to mutagenesis.

To assay for genotoxic molecules, researchers assay for DNA damage in cells exposed to the toxic substrates. This DNA damage can be in the form of single- and double-strand breaks, loss of excision repair, cross-linking, alkali-labile sites, point mutations, and structural and numerical chromosomal aberrations.[2] The compromised integrity of the genetic material has been known to cause cancer. As a consequence, many sophisticated techniques including Ames Assay, in vitro and in vivo Toxicology Tests, and Comet Assay have been developed to assess the chemicals' potential to cause DNA damage that may lead to cancer.


(Via Merriam Weber)


: a branch of pharmacology concerned with the application of immunological techniques and theory to the study of the effects of drugs especially on the immune system
: the immunological effects and significance of a particular drug (as morphine)


From Wikipedia, the free encyclopedia
Toxicokinetics (often abbreviated as 'TK') is the description of what rate a chemical will enter the body and what happens to it once it is in the body.


From Wikipedia, the free encyclopedia
A mycotoxin (from Greek μύκης (mykes, mukos) "fungus" and τοξικόν (toxikon) "poison")[1][2] is a toxic secondary metabolite produced by organisms of the fungi kingdom, commonly known as molds.[3] The term 'mycotoxin' is usually reserved for the toxic chemical products produced by fungi that readily colonize crops.[4] One mold species may produce many different mycotoxins, and the same mycotoxin may be produced by several species.[5]



From Wikipedia, the free encyclopedia

Depiction of the human body and bacteria that predominate
A microbiome is "the ecological community of commensal, symbiotic, and pathogenic microorganisms that literally share our body space."[1][2] Joshua Lederberg coined the term, arguing the importance of microorganisms inhabiting the human body in health and disease. Many scientific articles distinguish "microbiome" and "microbiota" to describe either the collective genomes of the microorganisms that reside in an environmental niche or the microorganisms themselves, respectively.[3][4][5] However by the original definitions these terms are largely synonymous.

Saturday, October 18, 2014

Fermented Yuca(Cassava) pancakes(gluten free, dairy free, corn free, soy free, nut free)

No flour? No problem. No banana's? No problem. Fermented yuca pancakes are a new favorite. Sadly, Abby cannot partake of these because of the fermented part of the picture, but the rest of us LOVE yuca and were very glad we experimented with these. Abby nor I can have banana's and boy have I missed them. You know when a banana is right on the edge of being overripe? That extra sweetness and that touch of almost boozy flavor? That is fermented yuca. Just no banana flavor. This makes mashed fermented yuca excellent for all sorts of baked goods to increase tenderness, sweetness, and moisture.

The rice yeast balls can be found online or most International markets. There are both Chinese and varieties from the Philippines. I usually use the variety from the Philippines it is the "Rotary" brand. (This is what I buy locally Ragi Manis )

1 1/2 cup mashed fermented Yuca***
2 eggs
2 teaspoons melted coconut oil
1 teaspoon baking powder(homemade, 1 teaspoon baking soda, 1 teaspoon tapioca starch,2 teaspoons cream of tartar)
1 dash pink himalayan salt
1/2 teaspoon vanilla extract(homemade vanilla beans soaked for months in potato vodka)

(you can add a bit of sugar, but the fermented yuca is sweet by itself it just isn't needed)

Mash the fermented yuca smooth in the bowl(in the center of each root is there is often a "core" they will look like thick threads or strings, remove and toss those), blend in the rest of the ingredients until smooth.

On a medium low well greased skillet make your pancakes. Low and slow. Without flour these are delicate, so these will take an extra gentle hand to flip.

***Fermented Yuca

Peel and cook your yuca. Boil about 15-20 minutes till tender.

Cool to room temperature

Use "rice ball yeast". I smash the yeast ball(1 ball per about 4 medium roots)till it is powdered and rub all over the yuca. I covered it up snug and placed on top of the fridge(where it is warmer) for 3 days. You know it is done when it smells fruity,boozy and is mushy and sweet. Keeps well in the fridge for a couple weeks.

Friday, October 17, 2014

Cane Syrup Homemade (to replace corn syrup or Lyles)

Since we are worried about Lyle's right now(not sure what in it she is reacting to but I always blame corn!)I went ahead and made a batch of homemade cane syrup. With the holidays approaching having cane syrup to bake with is a must for us. Cane syrup or Lyles golden makes a great straight across substitution for corn syrup.(However, with candies there may need to be some adjustments made)

5 cups organic Domino's or C&H cane sugar(the organic is why the color is more amber then clear)
2 cups water
1 teaspoon cream of tartar(still using frontier)
1 dash of salt.

Place all ingredients in a deep pot. Do it gently though so that you don't splatter the sides of the pot. It will reduce the chance of crystals in your syrup.

On medium/medium high bring to a boil. Gently stirring, very gently so you don't get sugar everywhere.

Once it hits a boil no more stirring. Pop a candy thermometer in and let it cook until it hits 230-240.

Allow to cool completely. Store in jars in the pantry. Should keep for a couple months. Mine will have have a few crystals after a couple months but in general it holds up well.

NOTE: I recommend letting it hit room temperature because based on humidity, type of sugar or (poor measuring) the syrup can become too thick. If you reheat and add a few more tablespoons of water when it is too thick it can be saved. It will likely get more crystals from reheating, but the organic sugar is NOT cheap and worth saving.

Saturday, October 11, 2014

Bean Pie

Last Spring one of my nieces was doing a fundraiser and selling magazines. I opted to subscribe to Saveur Magazine, hoping to get some neat idea's to either help me with some new technique or new ingredient for Abby.

In their latest edition they had an article and recipe for Navy Bean Pie. I suspect a lot of folks would skip right over that recipe, but for me it was like winning the lotto! :-)

I had to make a number of substitutions and really not the same recipe any longer but it certainly inspired a new tasty creation. I did not have any navy beans in the fridge but I had some lima beans I had made in the pressure cooker the other day. (Lima beans are an excellent source of the trace mineral, molybdenum, an integral component of the enzyme sulfite oxidase, which is responsible for detoxifying sulfites plus tons of other great stuff but their level of molybdenum is unique among the legumes)

Preheat oven 350

1 gluten free pie crust recipe(mine is gf flour, palm shortening, 1 egg and just enough water to make a soft dough. I roll between sheets of parchment with a liberal amount of gf flour. I don't measure )

beaten egg(beaten egg to brush the crust cutouts so the sugar sticks)
Roll out crust and place in pie pan. Trim the edges pretty tight. Reroll all the scrap dough and cut out with small cookie cutter. I brushed them with beaten egg and sprinkled with sugar. I then brushed the edge of the pie crust with beaten egg(helps them stick!) and placed my cutouts overlapping. Place in fridge until ready to fill with filling.


1 cup cooked(soft)lima beans(365 brand)
1 cup evaporated coconut milk(simmer 2 cups of coconut milk(homemade or safe for you) until 50 percent reduced allow to cool to room temp before using)
1 cup sugar( C&H or Domino's Organic Sugar)
4 Tablespoons of palm shortening(or coconut oil both from Tropical Traditions)
1 1/2 Tablespoons of gluten free flour
1 Tablespoon vanilla extract(homemade in potato vodka for corn-free)
1 teaspoon allspice
1 teaspoon ginger
1/2 teaspoon cloves
4 eggs

Throw all the filling ingredients into the blender and puree until smooth. Pour into prepared pie crust.

Bake 50-60 minutes until center is just set(just like making a pumpkin pie). Check after around 30 minutes and carefully tent with tinfoil if the crust is browning too much.

Best eaten completely chilled.

Top with some coconut whipped cream (the hard cream off the top of chilled coconut milk, a bit of powered sugar(corn free), and a sprinkle of agar if wanted for an extra firm cream.

Wednesday, October 8, 2014

Medications NOT Safe for Mito

I have provided some links and I strongly recommend you review the lists and review what medications you or your child are taking.

One that repeats again and again is acetaminophen(Tylenol)- NOT good for Mito patients. (first list also mentions; aspirin and naproxen)

Another group of meds mentioned repeatedly were a variety of Antibiotics.

Of interest many Antidepressants, mood stabilizers, and anxiety medications were mentioned.

Most know that some seizure medications, some anesthetics(lidocaine included), Cholesterol medications, even cancer medications are more risky for Mitochondrial Disease patients.

So what is in your medication chest? Do you know which ones are especially dangerous to you or your child?

Currently testing for Mitochondrial safety is NOT required. There are many lists of medications out there that are not complete. On a positive the lists of medications responsible for mitochondrial dysfunction are growing by the day which having access to them will hopefully help Mitochondrial Disease patients protect their mitochondria when they chose to be informed.

Today, we seem to turn a blind eye to the fact that medications have side effects and sometimes the side effects outweigh the benefits. We are a "quick fix" society. Drs. learn about medications from the representatives of the companies that sell the medications more often then not, which isn't exactly reassuring. The vast majority of Drs. are not familiar with Mito(many don't "believe" it is real) let alone which medications are dangerous to the population.

As a patient you need to do your own research. Minimize your risks in partnership with your Drs, don't depend on them to know the risks.

Another day I will post the scary long list of chemicals/environmental pollution(in your food!!!!) that are dangerous to our Mitochondria,a truly scary long list.

Medication-Induced Mitochondrial Damage and Disease.neustadt-Pieczenik

Drug Induced Mitochondrial Dysfunction(book)

Via MitoAction- Drugs with KNOWN Mitochondrial Toxicity

Monday, October 6, 2014

Chickpea Pie Bars: gluten free, dairy free, soy free, nut free, corn free. (maybe corn-lite)

Thanksgiving is coming and we are all dreaming of Pecan I mean Chickpea Pie. Since we started using roasted chickpeas instead of nuts in various recipes we all have really liked them. At first we really missed nuts especially pecans. Today when I sampled these I felt like I was eating a dessert from my childhood, apparently even my tastebuds have decided chickpea's are superior.

CORN_LITE POTENTIAL: Lyle's Golden Cane Syrup. Not sure if it is corn contaminated or not, but I have to admit that Abby got a bit of heartburn quickly after eating 1 of these. A couple months ago a similar reaction. Granted, Abby hasn't been doing so great with food for the last few months so might just be her sensitive gut. Or, she reacts to so much that it is possible it was contaminated with 1 of the hundreds of other things that upset her body, but we are certainly going to be careful about the next time we use the Lyle's, just in case it is the issue.

This recipe is heavy on the filling and light on the crust- as it should be. Do make sure to bake it long enough that before you remove from the oven the center no longer wobbles. I throw the pan in the fridge to hurry up cooling it off! Do wait until at least room temperature or chilled through before trying to cut.


1 cup all-purpose gluten free flour
1/4 cup granulated sugar(Domino's or C&H organic cane sugar)
1/2 teaspoon salt(pink himalayan or what is safe for you)
1/3 cup Palm Shortening(Tropical Traditions)

3 eggs
1 cup lyle's golden cane syrup
1/2 cup granulated sugar
1/2 cup brown sugar(make your own with Plantation blackstrap molasses and organic cane sugar)
2 Tablespoons palm shortening, melted
1 teaspoon vanilla extract(homemade with potato vodka)
1 cup roasted chickpea's (homemade, search my blog for the best recipe)

1.Preheat oven to 350 degrees(reduce to 325 if you are using clear glass for a pan). Line a 9X9 or 8x8 with parchment paper and grease the parchment too.

2.In a large bowl, mix together the flour, sugar, and salt. Cut in 1/3 cup palm shortening until it looks like coarse crumbs. Sprinkle the mixture evenly over the prepared pan, and press in firmly.

3.Bake for 20 minutes in the preheated oven.

4.While the crust is baking, mix the filling. In a large bowl mix together the eggs, Lyle's golden syrup, sugar, brown sugar, 2 tablespoons melted palm shortening, and vanilla until smooth. Pour the filling evenly over the hot crust as soon as it comes out of the oven. Sprinkle your chickpea's evenly across the top of the filling.

5.Bake for 30-35 minutes in the oven, or until set(no wobble in the center. If you need check in the last 10 minutes and cover with tinfoil if it is looking too brown ).

6.Allow to cool completely on a wire rack before slicing into bars.

Saturday, October 4, 2014

Another Abusive Hospital? We thought Justina was an Isolated Incident

Health Impact News posted this story this week.

Very disturbing.

I hope everyone has vetted their Specialists and Hospitals. If it happens once, twice, a dozen.. couple hundred, or thousand times potentially?

Not even our Medical System is free of corruption apparently when it comes to making a buck. Almighty dollar before the patient.

Take precautions folks.

Health Impact News: 10 and 12 Year Old Sisters Seized from Family by Hospital in Phoenix

Does the hospital you use or your Specialists are employed by receiving grant money or research dollars from the Government or Pharmaceutical companies? Probably a very good thing to know.

(I have cut and copied and saved the article in case the Courts order the news source to remove it. )

Thursday, October 2, 2014

Who Wants to be a Flu Shot Guinea Pig??? Playing with Fire.

The UMDF sent this email out:

Flu Vaccines

The flu vaccine is available at the NIH Clinical Center in Bethesda, Marylandd via the NIH MINI Study. The NIH is trying to immunize as many mitochondrial patients as they can this Fall.

The NIH will provide travel, lodging and meals for those who qualify. For those pressed for time, vaccinations and studies can be done in one day.

For more information, a PDF guide for families regarding the flu season, the flu vaccine and their study contact information is linked here: http://bit.ly/1qSdO9z or visit the NIH at: http://www.genome.gov/MINI

UMDF Mission
To promote research and education for the diagnosis, treatment, and cure for mitochondrial disorders and to provide support to affected individuals and families.

My jaw must have hit the floor when I read this because in my opinion, if there was ever a population of patients at much higher risk for side effects it is Mito Patients.

A few reasons why we will NEVER allow that nasty stuff near Abby:


he Lancet
published a study showing that the flu shot was only 1.2% effective.

A study conducted by The Lancet in 2010 brought out some startling revelations about the effectiveness of flu shots. The study involved a control group of 13,095 adults who were not vaccinated. The group was monitored to see if participants had been infected by the influenza virus, but 97% remained unaffected. Only 2.7% or 357 people in the non-vaccinated group ended up contracting the virus. Of the group of adults who were vaccinated with a trivalent inactivated influenza shot, only 1.2% did not catch the flu. The difference between the two outcomes is that the flu vaccine only prevents the flu in 1.5 out of every 100 adults injected with the flu shot not 60% as you’ve been told.

2) More Seizures
! Would take a med that the side effect was more seizures? Probably not.


On a separate note, during the 2010–2011 influenza season, CDC and the Food and Drug Administration (FDA) conducted enhanced monitoring for febrile seizures after influenza vaccination because of reports of an increased risk for fever and febrile seizures in young children in Australia associated with a 2010 Southern Hemisphere vaccine produced by CSL Biotherapies (up to nine febrile seizures per 1,000 doses). Because of the findings in Australia, the U.S. ACIP does not recommend the U.S.-licensed CSL Biotherapies' trivalent inactivated vaccine (Afluria) for children younger than 9 years.

3)Mito Toxic Ingredients: Again, would you take one of the meds that has the potential to cause Mito Dysfunction? Even if it actually did work? Probably not.

Type of Ingredient: (via the CDC )
Preservatives Thimerosal(IS Mercury which is deemed very dangerous by our Government) (only in multi-dose vials of flu vaccine)* To prevent contamination
Adjuvants Aluminum salts To help stimulate the body’s response to the antigens
Stabilizers Sugars, gelatin To keep the vaccine potent during transportation and storage
Residual cell culture materials Egg protein To grow enough of the virus or bacteria to make the vaccine
Residual inactivating ingredients Formaldehyde To kill viruses or inactivate toxins during the manufacturing process
Residual antibiotics Neomycin, sulfa drugs To prevent contamination by bacteria during the vaccine manufacturing process

A more complete list of ingredients via Wikipedia

Vaccine Culture media Excipients
Adenovirus vaccine Dulbecco's Modified Eagle Medium, human diploid fibroblast cell culture (WI-38) Acetone, alcohol, anhydrous lactose, castor oil, cellulose acetate phthalate, dextrose, D-fructose, D-mannose, FD&C Yellow #6 aluminum lake dye, fetal bovine serum, human serum albumin, magnesium stearate, micro crystalline cellulose, plasdone C, polacrilin potassium, potassium phosphate, sodium bicarbonate, sucrose
Anthrax vaccine (BioThrax) Puziss-Wright medium 1095, synthetic or semisynthetic Aluminum hydroxide, amino acids, benzethonium chloride, formaldehyde, inorganic salts and sugars, vitamins
BCG (Bacillus Calmette-Guérin) (Tice) Synthetic or semisynthetic Asparagine, citric acid, lactose, glycerin, iron ammonium citrate, magnesium sulfate, potassium phosphate
Influenza vaccine (Afluria) Chicken embryo Beta-propiolactone, calcium chloride, dibasic sodium phosphate, egg protein, monobasic potassium phosphate, monobasic sodium phosphate, neomycin sulfate, polymyxin B, potassium chloride, sodium taurodeoxychoalate, thimerosal (multi-dose vials only)
Influenza vaccine (Fluarix) Chicken embryo Formaldehyde, gentamicin sulfate, hydrocortisone, octoxynol-10, á-tocopheryl hydrogen succinate, polysorbate 80, sodium deoxycholate, ovalbumin
Influenza vaccine (Flulaval) Chicken embryo Formaldehyde, á-tocopheryl hydrogen succinate, polysorbate 80, sodium deoxycholate, thimerosal, ovalbumin
Influenza vaccine (Fluvirin) Chicken embryo Beta-propiolactone, egg protein, neomycin, nonylphenol ethoxylate, polymyxin, thimerosal (multi-dose containers), thimerosal[2] (single-dose syringes)
Influenza vaccine (Fluzone) Chicken embryo Egg protein, formaldehyde, gelatin (standard formulation only), octylphenol ethoxylate (Triton X-100),sodium phosphate, thimerosal (multi-dose containers only)
Influenza vaccine (FluMist) Chicken kidney cells, chicken embryo Arginine, dibasic potassium phosphate, egg protein, ethylene diamine tetraacetic acid, gentamicin sulfate, hydrolyzed porcine gelatin, monobasic potassium phosphate monosodium glutamate, sucrose
Pneumococcal vaccine (Pneumovax) Bovine protein Phenol
Pneumococcal vaccine (Prevnar) Soy peptone broth Aluminum phosphate, ammonium sulfate, casamino acid, polysorbate 80, succinate buffer, yeast
Rotavirus vaccine (Rotarix) Dulbecco's Modified Eagle Medium (DMEM) Amino acids, calcium carbonate, dextran, sorbitol, sucrose, vitamins, xanthan

List of Side Effects :
One 2007 study published in the Annals of Medicine4 concluded that:

"Abnormalities in arterial function and LDL oxidation may persist for at least two weeks after a slight inflammatory reaction induced by influenza vaccination. These could explain in part the earlier reported increase in cardiovascular risk during the first weeks after an acute inflammatory disorder."

WellnessAchiever.net (tons of great information and links)

Are there side effects? (via flu.gov)

Mild side effects usually begin soon after you get the vaccine and last one to two days. Possible mild side effects of the flu shot include:

Soreness, redness, and swelling at the injection site
Fainting, mainly in adolescents
Possible mild side effects of the nasal spray include:

Runny nose
Muscle aches
Serious side effects usually begin within a few minutes to a few hours after receiving the shot. Possible serious side effects of vaccination include:

Difficulty breathing
Swelling around the eyes or lips
Racing heart
Behavior changes
High fever
If you experience any of these reactions, seek medical attention immediately.

(meaning don't use if you have ANY of these health issues) via the CDC website:

LAIV should not be administered to people who have had a severe allergic reaction to the following:

Severe allergy to eggs.
Severe allergy to another component of the LAIV vaccine. The package insert should be consulted for components.9
Severe allergy to a prior dose of an influenza vaccine (IIV or LAIV).

LAIV should also not be administered to people who are in the following groups because the effectiveness or safety of LAIV is not known:

Children aged <2 years or adults aged ≥50 years Pregnant women People with known or suspected immunodeficiency diseases or immunosuppressed states (including those caused by HIV) Children or adolescents receiving aspirin or other salicylates (because of the association of Reye syndrome with wild-type influenza virus infection) People who have other medical conditions that place them at increased risk for complications from influenza, including: Asthma or reactive airways disease Other chronic disorders of the pulmonary or cardiovascular system (except hypertension) Neurological/neuromuscular diseases Metabolic disease, such as diabetes mellitus Renal or hepatic dysfunction Hemoglobinapathies

The following are precautions for use of LAIV

Guillain-Barré Syndrome (GBS) within 6 weeks of a previous dose of an influenza vaccine (IIV or LAIV)1
Presence of a moderate or severe acute illness with or without a fever.5 Persons who were hospitalized with an acute illness but who are now well enough to be discharged from a hospital can be vaccinated.

Lastly and again, Flu Shots just don't work:

A study published in the October 2008 issue of the Archives of Pediatric & Adolescent Medicine found that vaccinating young children against the flu had no impact on flu-related hospitalizations or doctor visits during two recent flu seasons. The researchers concluded that "significant influenza vaccine effectiveness could not be demonstrated for any season, age, or setting" examined.

A large-scale, systematic review of 51 studies, published in the Cochrane Database of Systematic Reviews in 2006, found no evidence that the flu vaccine is any more effective than a placebo in children under 2. The studies involved 260,000 children, age 6 to 23 months.

So, glad I did not donate to the UMDF this year. I cringe to think of my donated dollars being used to send out this email.

Even if Abby were healthy, it would be insane or worse to give her medications that have little to no benefit and lots of potential danger. Pretty much like sending a 4 year old to climb Mt. Everest by themselves. Odds are they will fail, and odds are high they are going to get hurt and even if they succeeded? Benefits next to ZERO.

In my opinion odds are the flu shot would be more likely to trigger Mito then prevent it.
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